Could Curiosity Be the Best Medicine for Chronic Illness?

“Whether you think you can, or you think you can’t, you’re right.” ~Henry Ford

We’ve all been there: happily ticking off life’s checkboxes, certain we’ve cracked the code, until—bam!—life decides otherwise. Divorce papers, layoffs, grief, or unexpected illness—life’s curveballs don’t discriminate.

For me, it was a sudden mystery illness at sixteen. What should have been a simple infection changed the trajectory of my entire life. Doctors were at a loss, tests offered no answers, and I was left navigating an uncertain reality, desperately clinging to control as my lifeline.

One day I’m cheering at the Friday night football …

“Whether you think you can, or you think you can’t, you’re right.” ~Henry Ford

We’ve all been there: happily ticking off life’s checkboxes, certain we’ve cracked the code, until—bam!—life decides otherwise. Divorce papers, layoffs, grief, or unexpected illness—life’s curveballs don’t discriminate.

For me, it was a sudden mystery illness at sixteen. What should have been a simple infection changed the trajectory of my entire life. Doctors were at a loss, tests offered no answers, and I was left navigating an uncertain reality, desperately clinging to control as my lifeline.

One day I’m cheering at the Friday night football game, and the next I’m navigating a seemingly endless string of endoscopies, colonoscopies, biopsies, EEGs, EKGs, psych tests, countless blood tests, and still no answers.

I remember the day it all went wrong.

I was in high school watching a movie at a friend’s house when we burned the popcorn. Annoying, sure, but not a cause for concern. Except for me, the room started spinning, and my head felt like it was going to explode, so I stepped outside to get some air.

Next thing I know, the cute boy I had a crush on found me passed out in the driveway. This was the beginning of chasing symptoms that were only getting more mysterious and increasingly worrisome.

Navigating a chronic mystery illness as a young adult felt impossible, devastatingly unfair, and inconsistent. One week I would think the worst was behind me, finally able to put my life back together, and the next I was blindsided once again by some new symptom.

My friends were getting jobs, going to parties, dating, and discovering who they were while I was curled up on the bathroom floor. By my twenties, leaving important meetings at work to throw up blood in the bathroom was my normal.

The hardest part was never knowing if I could trust my own body. Was I going to wake up healthy or in excruciating pain?

I spent years in victim mode, trying to “get it right,” believing if I tried hard enough I could control my way out of the problem. If I could just anticipate every twist, I’d never feel blindsided again.

Spoiler alert: it didn’t work. My health spiraled, my relationships suffered, and financial problems and self-medication replaced self-compassion and security. No amount of control shielded me from the inevitable messiness of being human, especially a human with a chronic illness.

Along the way, there were so many rock bottoms I’m not sure I could choose one pivotal moment. By the time I was approaching thirty, I had been on state disability and was taking so many meds that I was having paranoid, suicidal thoughts. It was clear that whatever uphill battle I was fighting wasn’t working, but I didn’t see another way out, and I was too young to give up. I think they call this being stuck between a rock and a hard place.

There was nowhere to go for advice or more answers, and that is the loneliest I have ever been. The unknown was sitting there, staring me in the face, playing a game of chicken.

Despite any evidence that I was going to win, I wasn’t going to back down either. So I walked away from traditional treatment plans, which weren’t working anyway, and focused on what I could control: my mindset and my attitude. It was time to learn how to make proverbial lemonade from a batch of rotten lemons.

To preserve the small amount of sanity I had left, curiosity became my lifeline. Since resisting or controlling reality didn’t work, what if I got curious about it instead? This wasn’t about blind optimism, toxic positivity, or magical thinking. Frankly, manifesting and cosmic trust felt too far-fetched for someone who didn’t know if they would be able to physically or mentally get out of bed.

I needed something practical, something that felt grounded and possible. “What if?” helped me suspend reality just long enough to see things in a different way. It shifted from a challenging self-experiment to my new guiding principle.

• What if